Patient centred care
Patient experience and the voices of children and young people, ensuring that the care we provide is respectful of and responsive to individual patient preferences and needs.
Key resources
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Children and Young People’s Engagement
RCPCH &Us tools to support trainees, paediatricians and healthcare professionals working with children and young people to drive service improvement.
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Children and Young People’s Voice
The United Nations Convention on the Rights of the Child and the voice of children and young people keeping children and young people at the heart of all we do.
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Patient Support
Resources and projects to support families on medicines education and management including information leaflets and public awareness campaigns.
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Projects
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Epilepsy Passport
Designed as a paper record of relevant and up-to-date clinical information to be carried by children and young people or their parents and carers living with epilepsy.
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Young Epilepsy App
Sharing information for young people with epilepsy and their parents, and providing a convenient and electronic way of recording details of seizure events.
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The Communication of Care Plans With Patients and Carers
Improving communication of care plans with patients and carers using whiteboards - a simple and low cost tool.
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Multidisciplinary Team Working to Standardise Neurodevelopmental Follow-Up
Two case examples of multidisciplinary approaches to using QI methodology to improve the delivery, uptake and recording of two-year developmental assessments for children born preterm.
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Improving HbA1c For Children and Young People Living With Diabetes
Improving the mean HbA1c for all children and young people living with diabetes who are treated with continuous subcutaneous insulin infusion using a package of support and education.
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Recipes for Engagement
A resource for healthcare professionals full of games and activities to support interactive and meaningful participation and engagement in service level decision making with children and young people.
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Involving Children and Young People in Specialised Commissioning
A resource for clinical reference groups developed with children and young people to support approaches for children and young people’s voice to inform and influence specialised commissioning.
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Involving Children, Young People and Family Voice in Committees
Guidance on involving patient voice in committees in a meaningful way developed with children, young people, families, committee members and College staff,
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Communicating the Aims and Outputs of the National Neonatal Audit Programme to Parents and Families
Developing a briefing document to inform healthcare professionals and parents about their unit using data from the National Neonatal Audit Programme and broaden the focus of a national audit from clinical improvement to encompass the patient experience.
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Keeping Mothers & Babies Together: Getting It Right First Time
Introducing a 'Keeping Mothers and Babies Together' pathway at the Royal Free London NHS Foundation Trust to reduce neonatal admissions to 6% and create a single unified pathway of care for all ‘at risk’ infants.
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